Pediatric Cancer Awareness Month

So, September is Pediatric Cancer Awareness month.....Here are some statistics to digest....

What if I told you…

- The American Cancer Society’s Annual Report shows $1 BILLION in total public support and it’s Extramural/Intramural Funding in Priority Areas shows only $4 MILLION is directed to childhood cancers. Less than half a penny of each of these dollars is directed to the #1 killing disease for kids under the age of 20

- For children between 1-19 years, cancer is the fourth leading cause of death overall, and the leading cause of disease related death. It remains responsible for more deaths from ages 1-19 than asthma, diabetes, cystic fibrosis and AIDS COMBINED

- Approximately 46 U.S. children and adolescents are diagnosed with cancer every single day

- 1 in every 330 children will develop cancer before the age of 19

- National Cancer Institute’s Federal Budget was $4.6 billion from this total ALL twelve major pediatric cancers received LESS THAN 3% of this budget

- For every six research dollars per patient with AIDS and every one research dollar per patient with breast cancer, a child with cancer receives only 30 cents

- Common adult cancers are extremely rare in children, yet there are many cancers that are almost exclusively found in children

- 1 out of every 5 children diagnosed with cancer dies

- 3 out of every 5 children diagnosed with cancer suffer from long-term or late onset side effects

- Common cancer symptoms in children are often suspected to be common illnesses and thus treated as such causing cancer to be found at later stages

- Attempts to detect childhood cancers at an earlier stage when the disease would react more favorably to treatment have largely failed

- Approximately 20% of adults with cancer show evidence that their disease has spread, yet almost 80% of children show that their cancer has spread to distant sites

- Cause of childhood cancers are unknown and at present, cannot be prevented

- Nationally, childhood cancer is 20 times more prevalent than pediatric AIDS yet pediatric AIDS receives four times the funding that childhood cancer receives

- On the average, 12,500 children in the US are diagnosed with cancer each year

- On the average, one in ever four elementary schools has a child with cancer

- 2,300 children and teenagers will die each year from cancer

- Several childhood cancers continue to have a very poor prognosis, including brain stem tumors, metastatic sarcomas and relapsed acute lymphoblastic leukemia and relapsed non-Hodgkin’s lymphoma

- Every day 9 children in the US are diagnosed with a brain tumor

- Brain tumors are the leading cause of cancer death from childhood cancer

- There are more than 120 different types of brain tumors, making effective treatment very complicated

- Because brain tumors are located at the control center for thought, emotion and movement, their effects on a child’s physical and cognitive abilities can be devastating

- At this time, brain cancer research is underfunded and THE PUBLIC REMAINS LARGELY UNAWARE of the magnitude of this disease

- The cure rate for most brain cancers is significantly lower than that for many other types of cancer

- The funding for pediatric cancer clinical trials has gone down every year since 2003, and is currently $26.4 million. By comparison, NCI funding for AIDS research was $254 million in 2006; funding for breast cancer topped $584 million the same year

- We may spend 3-5 times the amount of research money per patient on most adult cancer cases than we do on children with cancer

- In general, children with Central Nervous System (CNS) cancer do not share the favorable prognosis of those with many other common pediatric neoplasms

In the coming weeks/months our family, friends and anyone else interested in getting involved will be working on establishing a foundation to honor Declan, to help current/future children (and their families) and to perpetuate awareness, understanding and the search for a cure!

Please wear your gold ribbons this month… Tell people what you know about Pediatric Cancer… and, if you would, honor Declan by sharing his story, his life and how our beautiful little boy effected you.

REFERENCES:

CureSearch Website:
CureSearch represents the combined efforts of the Children’s Oncology Group (COG) and the National Childhood Cancer Foundation (NCCF)
www.curesearch.org/aboutcc

The National Cancer Institute: http://seer.cancer.gov/publications/childhood

American Cancer Society: http://www.cancer.org/

Pediatric Cancer Foundation: http://www.pcfweb.org/facts.php